Wednesday, January 10, 2007

Podcasts – WOW!

Spending the past weeks exploring podcasts and Youtube has truly been an eye-opening experience. I have come to see how valuable the internet can be as a way to exchange ideas and spread information. The students at my high school have often described the unique ways in which they use the internet. When they need information, advice, or assistance, the internet is usually the first place they go. Now I understand why and all I can say is WOW!

The voice analysis done on Speechmatch was incredible. By visually indicating the similarities and differences in speech patterns, an observer not only hears the differences in speech patterns but actually sees the different configurations that occur in the in varying patterns of speech. This is a valuable tool for all students struggling with speech and language problems. The opportunity to actually see the dissimilarities between your speech patterns and those of an errorless model provides new opportunities for addressing disparities in speech as well as providing a visual and audible model for normal speech. This double reinforcement can only increase the possibility for success.

Listening to the interview of a mother by her son, who has Asperger’s, gives us wonderful insight into their relationship. It provides a unique occasion for those of us who constantly look in on the Asperger’s world from the outside to hear what it sounds like on the inside. It affords an intimate view and an extraordinary opportunity to understand the inner dynamic of a family affected by this disorder. Educators often view parents as part the team (sometimes part of the problem). We see them in meetings, or while working with their children, or when discussing particular situations that must be addressed. Parents are the child’s advocate. Rarely, as educators, do we have an opportunity to listen to such an honest and heartwarming conversation between the parent and child. This interview provided a more natural insight into the rapport between a parent and her neurodiverse child. The question is asked, “Am I the son that you thought I would be when I was born?” The mother’s answer reflects what all mothers feel. Mothers may face different problems with their children but their response to these problems is universal. Mothers love, support, and want the best for their children and will do what it takes to get them what they need.

The video of the “angry professor” was humorous. Congressman Charlie Bass’s words were appalling. These recordings should be a caution to us all. Always remember someone could be watching… and recording!

The video of Professor Welkowitz on the men’s talk show Monadnock Men’s Resource Center provided another opportunity to educate the community about individuals with Asperger’s. Dr. Welkowitz quickly ran down the list of markers for this invisible disability. He discussed how individuals with Asperger’s are often social outsiders with restricted interests. He described how they are often rigid in their thinking and can have noticeable sensory sensitivities. Mostly male, Welkowitz explained how individuals with ASD are pragmatic thinkers whose contributions to society are uncontaminated by emotion or social constraint. Because of this variety of attributes, people with Asperger’s often have problems getting and holding jobs and establishing relationships. Dr. Welkowitz described Keene State’s efforts to assist these individuals in becoming valuable members of the community by helping them to achieve social success. The dating program, originated at Antioch New England, includes an “ask as you go” policy which recommends that each step of the way the question is asked, “Is it okay if I….(call you, ask you out, kiss you, etc.).” In a very brief period of time, this program presented the viewer with a well-rounded view of an individual with Asperger’s. In his closing remarks, Dr. Welkowitz offered this encouraging assessment, “The more you know them, the more you find ways to like them.” I have found this to be true and believe that through informational programs such as this, the community is educated on how to better understand and accept individuals who are differ from the norm.

On Asperger’s Conversations, Professor Welkowitz also offers valuable links to other informative Asperger’s sites. You can find information on some new offerings for people with Asperger’s on Kathleen Seidel’s site, neurodiversity.com/main.html. As a mother of a child with Asperger’s and a librarian, Kathleen examines public policy regarding AS and investigates recent biomedical and pharmaceutical claims regarding people on the spectrum and offers her insight. Andy Silvia and Marc’s Page have sites that offer first hand personal information about living on the spectrum. The support group sites wrong planet.net and Asperger Support Group Online offer a place for people with Asperger’s to communicate, ask questions, compare notes, and tender support. For their family members, Welkowitz lists sites that have forums for the exchange of valuable information by the families involved.

Having experienced the incredible variety of information that is available through podcasts, I can longer think of education in the same way. The internet offers an incredible amount of information, presented in such a variety of ways that educators can no longer fail to include it in their everyday teaching.

Podcasts -WOW!

Spending the past weeks exploring podcasts and Youtube has truly been an eye-opening experience. I have come to see how valuable the internet can be as a way to exchange ideas and spread information. The students at my high school have often described the unique ways in which they use the internet. When they need information, advice, or assistance, the internet is usually the first place they go. Now I understand why and all I can say is WOW!

The voice analysis done on Speechmatch was incredible. By visually indicating the similarities and differences in speech patterns, an observer not only hears the differences in speech patterns but actually sees the different configurations that occur in the in varying patterns of speech. This is a valuable tool for all students struggling with speech and language problems. The opportunity to actually see the dissimilarities between your speech patterns and those of an errorless model provides new opportunities for addressing disparities in speech as well as providing a visual and audible model for normal speech. This double reinforcement can only increase the possibility for success.

Listening to the interview of a mother by her son, who has Asperger’s, gives us wonderful insight into their relationship. It provides a unique occasion for those of us who constantly look in on the Asperger’s world from the outside to hear what it sounds like on the inside. It affords an intimate view and an extraordinary opportunity to understand the inner dynamic of a family affected by this disorder. Educators often view parents as part the team (sometimes part of the problem). We see them in meetings, or while working with their children, or when discussing particular situations that must be addressed. Parents are the child’s advocate. Rarely, as educators, do we have an opportunity to listen to such an honest and heartwarming conversation between the parent and child. This interview provided a more natural insight into the rapport between a parent and her neurodiverse child. The question is asked, “Am I the son that you thought I would be when I was born?” The mother’s answer reflects what all mothers feel. Mothers may face different problems with their children but their response to these problems is universal. Mothers love, support, and want the best for their children and will do what it takes to get them what they need.

The video of the “angry professor” was humorous. Congressman Charlie Bass’s words were appalling. These recordings should be a caution to us all. Always remember someone could be watching… and recording!

The video of Professor Welkowitz on the men’s talk show Monadnock Men’s Resource Center provided another opportunity to educate the community about individuals with Asperger’s. Dr. Welkowitz quickly ran down the list of markers for this invisible disability. He discussed how individuals with Asperger’s are often social outsiders with restricted interests. He described how they are often rigid in their thinking and can have noticeable sensory sensitivities. Mostly male, Welkowitz explained how individuals with ASD are pragmatic thinkers whose contributions to society are uncontaminated by emotion or social constraint. Because of this variety of attributes, people with Asperger’s often have problems getting and holding jobs and establishing relationships. Dr. Welkowitz described Keene State’s efforts to assist these individuals in becoming valuable members of the community by helping them to achieve social success. The dating program, originated at Antioch New England, includes an “ask as you go” policy which recommends that each step of the way the question is asked, “Is it okay if I….(call you, ask you out, kiss you, etc.).” In a very brief period of time, this program presented the viewer with a well-rounded view of an individual with Asperger’s. In his closing remarks, Dr. Welkowitz offered this encouraging assessment, “The more you know them, the more you find ways to like them.” I have found this to be true and believe that through informational programs such as this, the community is educated on how to better understand and accept individuals who are differ from the norm.

On Asperger’s Conversations, Professor Welkowitz also offers valuable links to other informative Asperger’s sites. You can find information on some new offerings for people with Asperger’s on Kathleen Seidel’s site, neurodiversity.com/main.html. As a mother of a child with Asperger’s and a librarian, Kathleen examines public policy regarding AS and investigates recent biomedical and pharmaceutical claims regarding people on the spectrum and offers her insight. Andy Silvia and Marc’s Page have sites that offer first hand personal information about living on the spectrum. The support group sites wrong planet.net and Asperger Support Group Online offer a place for people with Asperger’s to communicate, ask questions, compare notes, and tender support. For their family members, Welkowitz lists sites that have forums for the exchange of valuable information by the families involved.

Having experienced the incredible variety of information that is available through podcasts, I can longer think of education in the same way. The internet offers an incredible amount of information, presented in such a variety of ways that educators can no longer fail to include it in their everyday teaching.

Final Course Reflection

Society and Socialability

Reviewing class notes from the Introduction to Counseling Interventions Course given by Dr. Lawrence Welkowitz for the Autism Spectrum Disorders Certificate Program at Antioch University, I realize how far I have grown in my personal and professional understanding of Asperger’s Syndrome. So much new information has been added and previous knowledge has been reinforced and clarified. This barrage of information supports the theory that, despite their high intelligence, without adequate social skills, individuals with Asperger’s Syndrome may not become successful adults. Their ability to blossom into well-rounded adults can be directly linked to their ability to develop strong and diversified social support networks that can continuously provide personal reinforcement as they journey through life. We live in a social world. Whether playing at the park to commiserating on blog sites, communication makes the world go round. Good social skills are predictors of success. As an Instructional Assistant and tutor working with Asperger’s students at the high school level, I believe that I am in a position to assist students in learning how to develop and maintain strong social networks which will carry over into their college and employment careers.

During Class I, Dr. Welkowitz commented that Instructional Assistants could be a liability to Asperger’s students, actually impeding their social status in integrated settings. Andy Sylvia stated that it was his misfortune to be assigned an aid “who followed me around” when he returned to school after a breakdown. This view of classroom aides must be rectified in order to maximize our benefits to our students.

Being in the classroom with AS students, I try to be extremely sensitive to how my presence can contribute to the AS student’s sense of discomfort. Students, already feeling paranoid, fear that I am watching and reporting their deficiencies. They do not want their fellow classmates to think that they need assistance. Being ‘little professors’ themselves, they often resent the offer of help by someone who they consider intellectually inferior. However, it is well documented that without this support these students flounder. Nonetheless, Instructional Assistants must never lose sight of their goal which is to help these students achieve independence. In order to reach this goal, AS students must establish a social support network. Our job is to give them the tools they need to accomplish this.

In our school, Instructional Assistants keep a very low profile in the classroom, are inconspicuously attached to a specific student, and make it a point to offer assistance to all classroom students. We approach students only when they ask for help or when they are obviously struggling. Once the neurotypical population begins asking for assistance, the AS student is usually less reluctant to accept help. We also support subject teachers in classrooms as well as assisting resource teachers. We usually work with a wide range of students in a variety of settings. This puts us in an ideal situation to observe, mediate, assist and instruct throughout the day. In his book, Asperger’s Syndrome: A Guide for Parents and Professionals, Tony Attwood states, “…the aid applies a programme designed by the teacher and relevant therapists and specialists that addresses behavior, social, linguistic, motor and sensory abilities” (Attwood, 171). Others may create the strategy but it is the aid who is entrusted with enacting it. Being there, on the front lines and in the moment, puts us in a unique position to provide assistance and cues at the exact moment that they are needed. When necessary, an Instructional Assistant can help the student use tools, scripts, and other coping strategies that they have learned in their social group activities, thereby providing an opportunity to generalize this information.

As Dr. Welkowitz stated, when discussing Blink, judgments about social compatibility are made in the blink of an eye. Inability to make eye contact, poor listening skills, and ineptness at social reciprocity sets AS kids up for instantaneous social failure. In a snow ball effect, poor social skills lead to a lack of social reinforcement, and inability to create strong social networks which consequently leads to bullying which in turn results in loss of self-esteem. Instructional Assistants observe first hand the isolation that these students face daily. Being on the front lines, as an adult, in a teen age environment puts us in the unique position of being able to facilitate social encounters as they occur.


I have long wondered what I, in my position, could do to assist these students to break out of their isolation. When asked what his aide could have done to be more beneficial, Andy Sylvia simply said, “She could have stayed out of my way.” It was obvious how painful his experience was. Once again I wondered what aids can do to improve this situation for other students. This course has provided some answers.

First, self-esteem issues must be addressed. As we learned, assisting these students to establish goals and determine ways to achieve them is one way to increase their self-esteem. Since we attend classes, we are in an excellent position to assist with setting short-term goals and to support the student in achieving them. Whether the goal is to complete a particular homework assignment, work in a small group, or deliver a presentation, aids are in an opportune position to facilitate success. We can also help AS students to manage explosive behavior. As freshmen, Asperger’s students can be quite overwhelmed by the noisy, busy and raucous high school environment. This over stimulation can often lead to frequent emotional outbursts. Cuing AS students as the need arises to manage those behaviors and providing tools and alternative behaviors better enables them to attend classes with minimal disruption. Instructional Assistants can also help Asperger’s students capitalize on their special interests. AS students at our school are encouraged to start clubs that reinforce their special interests, and they do. Our Asperger’s students are responsible for initiating clubs such as an Ana Mae club, a Magic club, Dungeons and Dragons, multiple clubs involving computer games, and cartooning. These clubs have all been started by students on the spectrum. For them, it is the beginning on insider status. I have seen students blossom as they begin to share afternoons with other students who enjoy similar interests.

Working with co-morbidity in our students and exploring ways that the school can address these issues will greatly improve the lives of AS students. As an Instructional Assistant, I have personally observed many of these features but was unsure how to address them. Dr. Welkowitz gave a wonderful presentation on how to address students various obsessions and delusions. He suggested that we address them directly; that we persist in questioning the student until he can accept that his believe may be faulty. I have actually tried this technique with a student who was infuriated by his father. I persisted in challenging his beliefs until he finally admitted that perhaps his father didn’t mean to ruin his life. Having observed Dr. Welkowitz demonstrate this technique made it feasible for me to use it when needed.

Lastly, Instructional Assistants should consider themselves role models for teachers as well as students in demonstrating how acceptance of neurodiversity is beneficial to the entire school community. We must work to educate our school population about Asperger’s Syndrome and to accept these students for the unique individuals that they are. Integrated classrooms provide staff and students with an opportunity to embrace multiculturalism. We must “…raise the awareness of those around the individual with Asperger’s Syndrome so that the community becomes more understanding and appreciative of these people” (Baker & Welkowitz, 179).

As my Asperger’s students entered senior year and began the college application process, I became quite concerned about how they would handle life on a college campus. I am concerned that colleges are not yet prepared to provide the support that AS students will need.. Keene State provides an excellent model that other colleges should follow. Their peer mentoring program provides necessary student support for Asperger’s students. Andy Sylvia was on the giving as well as receiving end of this support system and was able to graduate with a degree in journalism.

Although he had all the support necessary as he traveled through the educational system, Andy is struggling to create the lasting support networks that are necessary to continue his success. Although he graduated from college, is a licensed realtor, heads the Democratic Party in Merrimack (all success indicators), he states that he feels like a failure. Still living at home with his parents, he has held 35 to 40 jobs in the two years since his graduation. In cases like this a program called Prospect, The National Autistic Society’s Supported Employment Service, can offer an employment support network. In a study of the employment success of those with Asperger’s Syndrome, Sophie Nesbit cites a paper presented by Good Et al in 1994, which reports that , “…despite the potential to work, few are in regular employment, Even among those with formal qualifications, employment levels are disappointing and occupational status is low” (Nesbit, 359).

But Andy is optimistic about his future. He enjoyed college because he felt it was an opportunity to assume a new identity in which he was not labeled. He felt he could do as he wanted as long as he got done what he had to do. Yet he has not maintained ties with any friends from childhood or college. . He refers to his friends now as mainly acquaintances he’s met through his political affiliations. Andy defines a friend through a plant analogy: “someone who’s there when you need them, without a lot of watering.”

Currently Andy is quite involved in politics and has just lost a close election in Merrimack. Andy shows insight of his quest to improve when he states “Politics is the art of getting what you want.” Perhaps it is the assistance he reluctantly received in high school and his enjoyable peer mentoring experience in college that has given him this self-understanding and the perseverance to continue the struggle to achieve his goals. He continues to put himself out there, looking for people with similar interests, exploring his options with a goal and a plan. I’d like to think that I can have that kind of an affect on my students.

Andy had some advice that clarifies Asperger’s in simple terms. He said, “ASD is like being color blind. We can see everything a neurotypical can see. We just can’t get all the nuances.” For our students he recommends that we let them know that there’s a bigger world out there and they have to make some sacrifices to get into it.






RESOURCES

Attwood,T. (1998) Asperger’s Syndrome: A Guide for Parents and Professionals.
Philadelphia: Jessica Kingsley Publishers, LTD.

Baker, L. & Welkowitz, L.A., eds. (2005) Asperger’s Syndrome: Intervening in Clinics,
Schools, and Communities. New Jersey: Lawrence Erlbaum Associates, Inc.

Nesbitt, Sophie. (2000)Why and why not? Factors influencing employment for
individuals with Asperger syndrome. London: SAGE Social Science Collections.

Sylvia, A. (2006) Presentation at Antioch New England, Keene, NH.

Tuesday, January 9, 2007

Reflections on Class II

Class II encompassed so much information that I’m not sure where to start so I’ll just focus on the subjects that I found most compelling.

As co-morbidity was discussed in class, it became very clear that schools must do more to address additional psychological diagnoses attached to students on the spectrum. Although co-morbidity exists in many individuals with Asperger’s, it is largely ignored. There are several reasons for this. Scientific studies prefer to focus on only one diagnosis at a time. Schools fear that multiple diagnoses will result in additional accommodations that will increase expenses. As an educator, I have noticed co-morbid features in all of my students with AS and yet, like others, I tend to assume these odd behaviors must be accepted. Being so focused on the social and academic quirks of AS prevents us from addressing co-morbid features. It is clear that educators must address these issues. For example, the Exposure with Response technique could be tackled within the school system. With neurotypical students, educators might try to demonstrate how a ritualistic behavior does not change the consequence of the antecedent. However, fear of over reaction could prevent us from trying this technique with the neurodiverse population. Educators must take advantage of teachable moments to demonstrate to AS students that the absence of the ritual will not affect the natural consequence of an event.

Attwood believes that the exacerbation of co-morbid behaviors is often due to the excessive social isolation of people on the spectrum. Peer mentoring is a wonderful way to reduce this isolation by assisting kids with Asperger’s in understanding and participating in their society. With peer mentoring, AS outsiders are able to experience what it’s like to be an insider. With insider status, they are able to stave off stress and depression while gaining access to information and activities that would otherwise elude them. While accompanying mentors, they are able to learn social rules and cues and to share experiences with contemporaries. Social communication and the ability to maintain a support network is the key to success for students with Asperger’s. What better way to provide this opportunity than to allow Asperger students to travel in the social circles of their classmates. The results have been an improved retention rate at college and a better quality of life. Though mentors must be careful not to cross relationship boundaries, this experience provides them with the opportunity to expand their social horizons, augment their experience in their field, be of service to their community, and earn some extra cash. It is definitely a win-win situation.

Because AS is classified as a mental illness, the diagnosis can have negative connotations and can stigmatize the patient resulting in further isolation. Educators must join the people within the AS community in attempting to reduce the stigma. By modifying terminology with more accurate descriptors such as neurodiversity and neurotypical, we can help the general public have a more neutral impression of people on the spectrum. By educating the public about people with AS, we can contribute positive information to local communities helping them to better understand neurodiversity. By assisting AS students with setting goals and developing the strategies to achieve them, facilitators can boost the self-esteem of those with Asperger’s increasing their prospects of fitting in to their community.

Listening to Kathleen Seidel discuss Asperger’s from the perspective of a parent was quite enlightening. Her personal story was quite poignant. She warned us to never assume that the child’s behavior in the classroom is the same as it is at home, explaining that a child will act much differently in a comfortable environment. Having once worked with pre-schoolers on the spectrum, this advice resonated with me. Many times, teachers would try to reach out to the parent only to have the parent shun the information. Perhaps the parents weren’t ‘wearing blinders’ but simply not exposed to the behaviors that were seen in school. In her attempt to educate the public, Seidel has created the neurodiversity website. In it, she also exposes treatments that she believes are “experimentation in the guise of medical care and renounces the “sensational rhetoric” sometimes used to describe individuals on the spectrum.

Andy Sylvia provided lots of information about how individuals with Asperger’s perceive their world. His self-deprecating humor and the stories of his continuing and relentless struggles to achieve success were really eye-opening and touching. His openness about his relationships, education and employment offered a revealing view from the world of Asperger’s.

It was an interesting, enlightening and busy day, dense with information. I’m still processing some of it but what an experience!